dc.contributor.author | Dolman, Robin | |
dc.contributor.author | Van Graan, Averalda | |
dc.contributor.author | Lourens, Lucinda | |
dc.date.accessioned | 2018-02-07T08:08:57Z | |
dc.date.available | 2018-02-07T08:08:57Z | |
dc.date.issued | 2017 | |
dc.identifier.citation | Dolman, R. et al. 2017. Nutrition-related concerns of the primary caregiver regarding children with spastic cerebral palsy: a cross-sectional, quantitative research study. IUNS, 21st International Congress of Nutrition. Buenos Aires, Argentina, 15-20 Oct. Annals of nutrition and metabolism, 71(Suppl 2):968. [http://doi.org/10.1159/000480486] | en_US |
dc.identifier.issn | 0250-6807 | |
dc.identifier.issn | 1421-9697 (Online) | |
dc.identifier.uri | http://hdl.handle.net/10394/26269 | |
dc.identifier.uri | http://doi.org/10.1159/000480486 | |
dc.identifier.uri | https://www.karger.com/Article/Abstract/480486 | |
dc.description.abstract | Background and objectives:
Parents with children suffering
from spastic cerebral palsy (CP) face various challenges regarding
their child’s health, nutritional status, growth, development and
quality of life (QOL). The nutrition-related challenges that these
children encounter are not well described in the South African setting. These concerns, its management, current feeding practices
and parental perspectives were investigated.
Methods:
This cross-sectional, quantitative research study
made use of a self-administered, validated questionnaire to obtain
information from participants at three various facilities: the Pretoria Centre for Cerebral Palsy (PCCP), the Baby Therapy Centre
(BTC) and New Hope School (NHS) situated in the Gauteng Province in South Africa. Recruitment and data collection took place
over a period of three months. Data was captured and the information was statistically analysed and extracted for interpretation.
Results:
Thirty-four questionnaires were completed by parents and returned. The most common nutrition-related concerns
reported were constipation (47.1%), underweight (32.4%) and
poor appetite (20.6%). Nutrition-related problems were mostly
managed by consulting a healthcare professional (HCP). Most
children were seen by a multidisciplinary team (MDT) of therapists, but only 44% consulted a registered dietitian (RD). Information pertaining to the current feeding practices showed that most
children required assistance at mealtimes (61.8%). Nutritionally
poor food choices such as deep fried food and sugary drinks were
reported. Solids (64.7%) and pureed food (23.5%) were mostly
tolerated. Most parents (55.9%) spent less than two hours daily on
feeding their child. Parents lacked confidence when dealing with
nutrition-related problems. Most were, however, content when
preparing meals, feeding their child and with how their child was
growing, developing and their overall health.
Conclusions:
Nutrition-related concerns that these parents
encountered with their spastic CP child were common concerns.
The role of the RD in addressing and managing nutrition-related
problems, advising on healthy feeding practices and parental support needs to be emphasized and remains a crucial part of treatment in this group of disabled children | en_US |
dc.language.iso | en | en_US |
dc.publisher | Karger | en_US |
dc.subject | Cerebral palsy | en_US |
dc.subject | Nutrition-related problems | en_US |
dc.subject | Feeding practices | en_US |
dc.subject | Parental concerns | en_US |
dc.subject | Dietitian | en_US |
dc.title | Nutrition-related concerns of the primary caregiver regarding children with spastic cerebral palsy: a cross-sectional, quantitative research study | en_US |
dc.type | Presentation | en_US |
dc.contributor.researchID | 10676287 - Dolman, Robin Claire | |
dc.contributor.researchID | 12843601 - Van Graan, Averalda Eldorine | |